Patient & public involvement

Research works better when the people it affects help shape it.

I work with patients, carers, families and members of the public at different stages of research, from choosing the questions to sharing what we found. These are some of the projects I’ve been part of.

Projects

Consultant · since 2024

Evelina London Children’s Hospital

I’m evaluating patient and public involvement in the Neurology department: I designed and analysed surveys of clinical staff, and recommended ways to build patient perspectives into research strategy and reporting. I also sat on the panel for Round 2 of the Evelina London Children’s Charity Research Development Fund, a £500,000 call for fellowships and research capacity awards.

Co-design lead · funded 2026

NIHR i4i FAST · Q-CDSS

I lead stakeholder co-design for Q-CDSS, a hybrid classical–quantum decision-support tool to predict critical events such as cardiac arrest in intensive care patients. The project, led by UCL’s AI4coma lab with Applied Quantum Computing and Guy’s and St Thomas’ NHS Foundation Trust, was funded by NIHR Invention for Innovation (i4i) FAST in 2026.

Online tool

PPIE decision-support tool

An R Shiny app for planning, delivering and evaluating involvement. It recommends how much involvement a project needs and which methods suit it, and produces downloadable PPIE plans and evaluation templates. Open the tool.

Writing · 2026

How to embed PPIE into research or clinical service projects

My article in the British Academy of Childhood Disability’s newsletter (Summer 2026). Drawing on our survey at Evelina London, it sets out a practical approach: decide what involvement is for and how much power contributors hold, recruit deliberately, keep each contribution traceable, and evaluate. Read the article (PDF).

Young adult representative · 2020–2023

James Lind Alliance Childhood Neurological Conditions Priority Setting Partnership

From 2020 to 2023 I was a young adult representative on the steering group of this partnership between patients, families and clinicians, run with the British Paediatric Neurology Association. I helped analyse the survey data and co-wrote the commentary on emotional wellbeing. The top ten UK research priorities are published in Developmental Medicine & Child Neurology (2024).

Volunteer · since 2018

Encephalitis International

Support, information and research volunteer: peer support, public engagement and patient-facing resources. I wrote the charity’s information page on CLIPPERS and co-wrote a report on Encephalitis Conference 2021 for ACNR.

Public contributor · since 2021

NIHR HPRU in Emerging and Zoonotic Infections

I’m a public contributor to the Health Protection Research Unit, helping improve how it involves patients and the public in its research.

Speaking

Speaking on patient involvement

Talks and panels on the patient’s perspective and on involving patients in research, at the Royal College of Paediatrics and Child Health, the British Paediatric Neurology Association and an NIHR internship training day. All talks.

Resources for researchers

Get involved

If you’d like to take part in a project, or want help planning involvement in yours, get in touch.